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J, a good friend, and I accomplished the 2-hour drive from my place to the campground in Ohio, stopping at Cabela’s in West Virginia, the hunting, fishing, and outdoor gear emporium that also had bison burgers and deer meat custard if you wanted to take a break from shopping. (Only kidding about the custard). I bought a long-sleeved shirt because I didn’t pack any and the air took on a chill even though, technically, it was still summer. Going to Cabela’s put J even more in the mood for camping, but I just kept muttering that line to myself that Dorothy says in The Wizard of Oz: “There’s no place like home.”

J and I traveled the gravely, rutted road for one mile once we got off the highway and then we were there–Seneca Lake Resort–which was 300 lots filled with 300 trailers. This time was the first for me since my stroke 6 years ago that I agreed to go. It was a gargantuan step that took me out of my comfort zone of television, writing, and exercising in my own apartment. I was ready for the challenge.

As we pulled up to her trailer house, J had an addition–an attached, screened-in porch as do some of the people, and some people have ongoing projects–an extra bathroom in progress, a built-out kitchen soon to be completed, an almost expanded bedroom. And some people only have the original trailer. But all of the people enjoy camping. I mean, really enjoy camping.

I can’t expect anybody who hasn’t experienced a stroke to know, at exactly the point of our arrival, what dangers lie ahead. I hadn’t fallen for over a year and yet I saw all that lay before me–a high step up to the screened porch, four  wooden steps to get into the trailer, throw rugs as my eye could visualize, a back deck with a high step, and 5 rocking, unstable recliners throughout the porch. But I had come this far and I wasn’t going to renege. I just wasn’t. I had to pee and it was a decision whether to go up those wooden steps or hold it in. (I held it in for a little while longer).

The weekend was great, but the challenges even more so. So I present the list: 5 Things You Have to Remember about Camping as a Stroke Survivor.

#1: Forget your fear of bugs. This is camping. The first time I saw a wasp in J’s trailer, I thought life as I knew it was coming to an end. I’m allergic to anything “bee-like.” Then my mother’s words returned to me: “If you don’t bother it, it won’t bother you.” My mother’s words weren’t at all true, but you have to forget about the flyin’ and/or creepy crawlies when you go camping. You have to pretend that they’re your friends. (Come to think of it, some of my friends have stung me, too, but I digress).

#2: Lose your fear of food. Sometimes, you just have to go with the flow. I am a picky eater. I eat the same things every day and only the combination varies: yogurt, bread, cheese, turkey, peas, bananas, and oatmeal. J served spicy-hot chili with meat one night, sausages with fried onions and peppers the next night. I ate sparingly, but not sparingly enough. No more information needed. 

And it was shocking  when J’s husband, who has Southern roots, announced that dessert was boiled peanuts. I never had boiled peanuts and the thought of those little legumes jumping and sloshing around in scalding hot water made me sad. But after I tasted them, I was hooked and I didn’t feel sorry for those peanuts anymore. I started thinking if boiled peanuts were offered on Amazon, the website where I should own stock in the company, I’d order them.

#3: Don’t ever say, “Eeeew.” We went fishing, just the three of us. Their son stayed with a friend and they were catching bugs to put into the ant farm that I bought him as a gift (also known as a child’s self-created apocalypse. Beetles and ants? You can imagine). Anyway, I was sitting on the rocking boat and I was pretending that I wasn’t sea sick, when all of a sudden, J’s husband caught a big one–a flapping, pissed-off bass that was putting up a pretty good fight. 

After reeling it in, J said, “Here, you hold it by the line while I take a picture.” There were a lot of things wrong with that picture, but at the top of the list is the fact that the fish, now going bonkers, was spraying lake water on my body. I was a little OCD now from my stroke, and once we returned from fishing, I couldn’t take a shower after because the trailer’s tub is too high, but I promised myself that I wouldn’t say the “E” word even once, so I let the fish have his agony while she snapped a few pics. But that doesn’t prevent me from saying it now, safely back in the comfort zone. EEEEEEEEW!

#4: Do what the other campers do. Mostly everybody had a golf cart on their property for visiting other campers or just snooping at the other 299 trailers to see what they had going on. I saw them going by, golf cart after golf cart, many of them driven by young kids. The park didn’t care as long as your foot touched the pedal. J had a golf cart, too, and said she wanted to give me a tour of the park-like setting. The golf cart‘s speeds were “off” and “beyond-your-wildest-dreams-fast, aka “Indy 500-car fast.” There were no seat belts, so her husband used a spare garden hose to keep me from falling out. That gesture really wasn’t necessary because I wasn’t going anywhere. Seeing the setup beforehand, I grabbed tight to the bar right behind J’s head, and the garden hose belt fell off 50 feet from the trailer when we started. 

We were off! I kept me eyes open in a wide-eyed stare, waiting for my eventual death, going around sharp curves and hard bumps in the road, but after a few minutes, I enjoyed it. My hair was shot to shit because the golf cart didn’t have a windshield either. But the amazing thing about all the campers we passed on that mini road trip is that they didn’t care what I looked like. If you ever want to feel accepted, go camping. The reason? Everybody in the camp looks like shit, too.

#5: Relaxation is the key. For 3 days (except for the aforementioned), I was totally relaxed. I lay in the sun thinking only good thoughts. I sat in the recliner and saw, through the screened-in porch, scores of cardinals, hummingbirds, and yellow finches traveling to and fro to the 5 bird feeders, hanging from strings to keep them out of the raccoons’ reach. I reclined by the fire pit and was thankful for J sharing this experience with me and the lily pads she pointed out on the lake, for J’s husband who was all about safety, and J’s nine-year-old son for offering to help me to traverse the flagstone walkway and showing me the frogs he caught (and let go). 

Soon as I got home, it was back to the same old, same old, but for 98% of the 3 days I was there, I had found nirvana.

Joyce Hoffman

Joyce Hoffman

Joyce Hoffman is one of the world's top 10 stroke bloggers according to the Medical News Today. You can find the original post and other blogs Joyce wrote in Tales of a Stroke Survivor. (https://talesofastrokesurvivor.blog)
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8 years ago

I LOVE to camp. Have not been camping since my stroke. Can't find anyone who has camping equipment and wants to go camping

Joyce Hoffman
8 years ago

Thank you, Rebecca. Your comment was so uplifting!

Rebecca Dutton
8 years ago

I used to go camping so I am really impressed by your success and ability to overcome frustration. An inspiring and truthful story about how stroke survivors can take recovery into their own hands after rehab ends.

8 years ago

My main concern when camping is not having to get up in the night to go to the bathroom. Getting appropriate clothes and shoes on in the tent is not always successful. So I make sure I get dehydrated from dinner on.

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